Saturday, April 11, 2009

Life isn't always fair!!!



Hi friends,
You guys remember my nephew, Srikar. A few months ago Srikar was diagnosed with a rare brain condition known as hemimegalencephaly. Hemimegalencephaly is a rare condition characterized by the enlargement of one-half of the brain. Children suffering from this condition often suffer from intractable seizures. To learn more about it you can visit wikipedia.

We came to know about his condition in his 3rd month. Since then life isn't very smooth going for our kid nor for us. Lots n lots of doctor visits, lots and lots of tests, MRIs, CAT scans.. oh gosh. Children with hemimegalencephaly must undergo a Hemispherectomy to stop seizure activity.

Hemispherectomy is a surgical procedure where one half of the brain is removed or disabled. In Srikar's case his left side brain is bigger and has to be removed. He is undergoing surgery on 15th of this month i.e., on Wednesday at John Hopkins Hospital in Baltimore. Even the thought of it runs chill in my spine.

Well srikar is leaving for Baltimore tommorow morning. We are so worried, for the kid had to go through all this at this small age in his life. Life isn't always fare, I guess. I pray to God to give him strength and couage to pass through these hard times. And I have a request for you guys too.. Please keep him in your prayers too. This is the time when he can use all the support and well wishes of family and friends.

May God bless you Srikar and be by your side all time during these hard times.
luv Babai...

We are starting a new blog for Srikar which will update details of his surgery. The blog address is www.srikarpotluri.blogspot.com

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